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Woman Takes Her Daughter's Fight With Cancer To Twitter
“It was almost like I wasn’t really living my life at that moment. Like it was hard to believe it was me.”
Last year Lorelei Decker was diagnosed with Hodgkin’s Lymphoma, a cancerous tumor in her chest.
“It's been harder than I expected.”
Determined to fight the cancer Lorelei and her mom used social media to document her journey.
“It was the only way that I could cope,” Andrea decker blogged of six failed rounds of chemo but when things were looking grim the Decker's got great news a stem cell transplant could cure Lorelei’s cancer.
“I was excited that I still had options.”
With her sister a match there was only one obstacle ahead Blue Cross Blue Shield of Oklahoma denied coverage for the transplant.
“I was blindsided. It wasn't even an option to us that they would deny it,” said Lorelei.
Not knowing what else to do the Decker’s took their fight to twitter.
“It was a safe way to vent,” Andrea said.
But they never expected the response they got.
“I was trending in Oklahoma City, #ApproveLorelei was trending, my mom’s twitter name was trending.”
By the next day the Decker's got a phone call.
“They reversed the denial and they have approved it ,” said Lorelei.
While Lorelei and her mom are grateful for the outcome they say it never should have come to this.
“The only thing that happened between denial and approval was a twitter storm,” said Andrea.
Because of HIPAA policy Blue Cross Blue Shield of Oklahoma declined to comment but issued this statement:
"We have an established medical review process to ensure that our members receive appropriate, necessary and effective care."
Lorelei says without her followers she may not have gotten approved.
“I can't say thank you enough.”
But says this is just the beginning
“There’s still a fight for those who haven’t been approved yet.”
Posted: Wednesday, March 6 2013, 09:33 PM CST
IN OKLAHOMA NEWS
More severe storms in the offing for Oklahoma
May 19, 2013 18:44 GMT
OKLAHOMA CITY (AP) -- The Storm Prediction Center in Norman says there is a risk of strong tornadoes in a storm system developing in central Oklahoma.
Forecasters say storms are expected to form Sunday afternoon evening and that the advised area includes portions of Kansas, Missouri and Nebraska.
The center says moist and unstable conditions are meeting upper-level winds that have the potential to spin off tornadoes. Forecasters say large hail and damaging winds in some areas are also possible.
Officials say residents should monitor reports for possible watches, warnings or weather statements later in the day.
State and local emergency managers are monitoring conditions.
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